A WIDNES woman with a rare incurable disease has penned a children's book.
Clare Adams, 45, was diagnosed with pulmonary arterial hypertension in November 2023 and was given weeks to months left to live in May 2025 after being diagnosed with an even rarer condition called pulmonary veno-occlusive disease (PVOD).
She was initially treated at Papworth Hospital in Cambridge, but, refusing to accept her prognosis, she sought a second opinion from a specialist hospital in Sheffield.
Doctors there decided to try her on a treatment called epoprostenol, administered through an IV line to her heart.
The treatment carries risks, but she has seen slight improvements over the last 12 months.
She has also lost seven stone and is determined to fight her way to a double lung transplant.
Despite being in a wheelchair and on oxygen 24/7, Clare has found the time to write a children's book.
Titled 'My Auntie', it explains her daily life with a wheelchair, oxygen, and a medication pump, aiming to raise awareness about people with disabilities.
The book is available to purchase on Amazon.
Clare is hopeful that her story will help to normalise disabilities.
"I'd love to share my story to raise awareness about people with disabilities being normal," she said.
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