THE family of a Widnes schoolgirl who has a life-threatening condition and survives on a daily cocktail of 30 drugs is hoping they may have discovered new treatment that could transform her life.
Hannah Bowness-Major, aged 13, suffers from complex chronic conditions including eczema, asthma and anaphylaxis.
She also has adrenal insufficiency, very rare in children, which means she can’t fight infection or function properly. Her body goes into shock and her heart stops.
Last July, Hannah contracted MRSA pneumonia and was fighting for her life. She has survived two earlier crisis episodes.
Her mum, Karen, aged 38, a florist from Cronton, said: “She has been very close to death three times. It was horrendous. Her heart stops.
“If it wasn’t for Ijaz Ahmad, her consultant paediatrician, she wouldn’t be here. Whiston Hospital has been truly amazing. They have known here since she was a tiny baby.”
Hannah has seen countless consultants and tried all sorts of treatments including acupuncture, homeopathy and Chinese herbal medicine.
Karen now beleves that Professor Peter Hindmarsh, a consultant paediatric endocinologist at Great Ormond Street Hospital in London, could offer Hannah new hope.
He specialises in adrenal disorders and has developed a continuous hydrocortisone pump.
Hannah sees him on June 6, thanks to parents at SS Peter & Paul Catholic College, where Hannah studies, who have teamed up to fund her specialist treatment. Karen does not yet know the full cost of the new therapy but expects it to run into thousands.
Fundraisers have donated almost £600 in a week and are holding a race night on Friday, May 23, at 7pm in Holy Family Club, Cronton.
Karen said:”These mums and dads have been amazing.”
Hannah never complains and always thinks of others.
Her dad, Tommy, aged 55, and sister Grace, aged 10, provide constant support.
Hannah sold her toys for children in hospital and donated money to Stephen Sutton, the 19-year-old cancer victim who won the hearts of the nation and has raised almost £4 million for the Teenage Cancer Trust.
Karen said: “She sent Stephen a thumbs up picture of herself because she was in hospital at the same time as him. She is just a joy. Everyone loves her. She is very mature and responsible.
“She is in her top set at school but misses 50 per cent of her lessons because she is off sick so much.
“This illness is having a massive impact on her. She is really struggling. She goes grey and all her energy saps.
“All any parent wants is for their children to be happy and healthy. If I could wave a magic wand and make it better or take it away and have it myself I would.”
To support Hannah, visit justgiving.com/yimby/helpinghannah.
Race night tickets priced £5 adults, £1 children are available from Karen on 07960 622116 or on the door.